“My Health Record” To opt out or not?

[tom604]

I'm out, at least until we see if it actually works and is used properly.
You can always opt in again in a few years time.

the question is ,can you opt back out? until you can i'm out

[straightshooter]

I can see that just about everybody has succumbed to a major misdirection in discussing this issue.
So you think 'you' own your medical records or you think your medical records are sacrosanct and only available to you and can't be hacked.
Think again.
Do you go to a bulk billing doctor, do you claim on medicare or a private insurer?
Of course you do and so do your medical records and of course they are available virtually on demand to many authorities.
I suspect this is more about devolving data input to closer to a 'user' level to enable doctor and patient surveillance in something a little closer to real time and thus reducing the administrative burdens in so doing.

[trekin]

Data security risks aside, the regristry is now being used by QLD Health to force pensioners to use doctors and specialist that they want you use. Forcing a lot of pensioners to change specialist mid stream in treatment is not clinicly inducive to the wellbeing of the patient. In most cases, changing specialist means going back on a waiting list, going back though all the tests, and than, more than likely having to change treatment regime. QLD Health are doing this by refusing to pay the patient travel & accommodation subsidy to your preferred specialist if there is one closer. Private heath funds will be following suit.

[Andrew1au]

I'm out, at least until we see if it actually works and is used properly.
You can always opt in again in a few years time.

Yeah, this is what I’m thinking.

[Andrew1au]

I can see that just about everybody has succumbed to a major misdirection in discussing this issue.
So you think 'you' own your medical records or you think your medical records are sacrosanct and only available to you and can't be hacked.
Think again.
Do you go to a bulk billing doctor, do you claim on medicare or a private insurer?
Of course you do and so do your medical records and of course they are available virtually on demand to many authorities.
I suspect this is more about devolving data input to closer to a 'user' level to enable doctor and patient surveillance in something a little closer to real time and thus reducing the administrative burdens in so doing.

That’s quite different. If I claim my GP visit on Medicare, then the government can see that I went to a doctor. If I participate in this health record, they can see WHY I went to a doctor and the results of said visit.

[bullzeye]

Alan Jones said to opt-out, so yep - that's what I've done

[Sergeant Hartman]

Interesting, where did you read it.... don't say Andrew bolt or toby about or Pauline notHandsome said it

Data security risks aside, the regristry is now being used by QLD Health to force pensioners to use doctors and specialist that they want you use. Forcing a lot of pensioners to change specialist mid stream in treatment is not clinicly inducive to the wellbeing of the patient. In most cases, changing specialist means going back on a waiting list, going back though all the tests, and than, more than likely having to change treatment regime. QLD Health are doing this by refusing to pay the patient travel & accommodation subsidy to your preferred specialist if there is one closer. Private heath funds will be following suit.

[trekin]

Interesting, where did you read it.... don't say Andrew bolt or toby about or Pauline notHandsome said it

Data security risks aside, the regristry is now being used by QLD Health to force pensioners to use doctors and specialist that they want you use. Forcing a lot of pensioners to change specialist mid stream in treatment is not clinicly inducive to the wellbeing of the patient. In most cases, changing specialist means going back on a waiting list, going back though all the tests, and than, more than likely having to change treatment regime. QLD Health are doing this by refusing to pay the patient travel & accommodation subsidy to your preferred specialist if there is one closer. Private heath funds will be following suit.

Didn't need to read about it. Happened to the wife yesterday. Been seeing a cancer specialist for the last 5-6 years, specialist is 360 km round trip away, and now their saying they will no longer pay the subsidy to her preferred specialist because their is one 160 km closer (who we believe has been there thoughout here treatment). Also happened to me earlier this year, been seeing a specialist in Brissy, 12 hrs by car/ 13 hrs by car train, one of only two specialist in field here in QLD, second one is only 360 round away. Second one does not have very good reviews, and my family GP wont even give me a referral to see him as his repretation is that bad, but QLD health will now only pay subsidy if I go to him in the future. Their arguement is that with the registry the closer specialist will have all the imformation they need to continue treatment, which is fair enough if they did, but personal expierence proves what I said above about waiting lists etc.

[Sergeant Hartman]

Well tbh that's not really a my health record issue. But beaurocrats can be fkwits at times.... other times they got no idea of real world issues.... they likely can meet their kpi by saying a couple thousand dollars a year...... while other beaurocrats waste a few hundred thousand dollars come November cuz if they don't spend the money they won't get it all next year

[trekin]

Well tbh that's not really a my health record issue. But beaurocrats can be fkwits at times.... other times they got no idea of real world issues.... they likely can meet their kpi by saying a couple thousand dollars a year...... while other beaurocrats waste a few hundred thousand dollars come November cuz if they don't spend the money they won't get it all next year

So, some fkwit beaurocrat working for a govt dept abusing the registry to save a few bucks, while potentially putting patients health at risk, is different to some fkwit crim hacking the registry and holding patients to ramsom, how exactly? Except, if we are to believe you, the fkwit beaurocrat scenario is 100% more likely to happen. 100% more likely to have real world effects on real world people.

[Sergeant Hartman]

Mate, I am still unsure why you blaming my health portal. And yes Ihave being argumentative. So I'll finish here, hopefully it clears my point... being devils advocate.

Don't you think that a department employee talked with approving travel claims gets told, ok buster goes sane money so look at these forms and those in country areas who have longer than 100km trips, ar if they got an equivalent specialist closer, if so sent the claims and tell them to go the closer specialist.

Seeing I presume you fill out a paper or an online form, request to get data from there, cuz I don't think the my health record has the smarts to flag your location and your specialist location and then search for specialists that are closest to you. This type of matching is moe easiest to do by human

[trekin]

Mate, I am still unsure why you blaming my health portal. And yes Ihave being argumentative. So I'll finish here, hopefully it clears my point... being devils advocate.

Don't you think that a department employee talked with approving travel claims gets told, ok buster goes sane money so look at these forms and those in country areas who have longer than 100km trips, ar if they got an equivalent specialist closer, if so sent the claims and tell them to go the closer specialist.

Seeing I presume you fill out a paper or an online form, request to get data from there, cuz I don't think the my health record has the smarts to flag your location and your specialist location and then search for specialists that are closest to you. This type of matching is moe easiest to do by human

"Firstly let me say I just recently went on a rant about this. So I will go again. Apologies if you seeing it again. Secondly about 5 years ago I was involved in this to introduce it to health care workers, also having a good IT background I suppose I understood both the good points and challenges this faced. Thirdly i opted in and honestly I would definately recommend everyone to NOT opt out."
Hardly fits the definition of a devils advocate.

Mate, I could debate with you this till the cows come home, but my time and energies are best spent elsewhere. However, be assured, there are plenty members of this forum who know where I'm coming from and understand the ramifications. These are the people who understand that their health and well being means more to them than the bottom line of some govt dept or the ROI for the shareholders of some consulting company with a contract with a dodgy government.